Baby Jun Hao made the news after he was born on March 24 in Johor with ectopia cordis – a rare condition where the heart was located outside the chest.
The baby was the fourth born with the condition to be treated at HKL. The other three died as well.
Right from the time he was born, doctors had warned the parents that baby Jun Hao had only a slim chance of living.
But the fighter baby surprised everyone by surviving the next few days.
His father, Guan Siang, had really thought his son would make it through.
Both he and his wife had even temporarily relocated to Kuala Lumpur to care for their son. They stayed with a relative.
However, an emergency call from the hospital around 8pm yesterday dashed hopes of recovery when the doctors told the devastated parents that the baby was in critical condition.
“I rushed to the hospital with my wife and mother and waited by my son’s side. But a few hours later, he passed away,” said Guan Siang when met outside the mortuary.
He added the doctors had planned to go ahead with a procedure where specially-ordered artificial skin from America would be used to cover Jun Hao’s exposed heart.
Guan Siang said his son would be cremated and the family planned to scatter the ashes into the ocean.
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